Linking with healthcare data

Every time we have contact with NHS data is recorded. This can range from admissions to hospital. attending A&E or seeing the GP. This data can capture all kinds of information and can help us understand how we use the healthcare system.

Here at SHARE UK we can use routinely collected healthcare data for research. All of this data is completely anonymised. Your privacy is protected. We would never know who you are are and all personal information is kept separate from healthcare data.

By looking at how people use the healthcare system we can help to make it better. We can learn more about how things can improve and the best approaches for good care.

You can help us with this even more by linking any information you give on the SHARE UK website with routinely collected healthcare data. Everything will remain completely anonymous and even our researchers are not able to identify you.

If you would like to help simply click on the ‘health care data’ tab in the ‘my account’  section

 

You’ll be asked for some details about yourself. This information will only be used to make the link with your healthcare data. The information will not be shared with anyone and will be kept separate from any other information you give us. Even our researchers will not be able to identify you.

We ask for your address for the NHS to make the link with your healthcare information. Once this link is made this information is destroyed. We don’t use your address for any other purpose and will never pass it onto anyone else. We will never write to you at your home address.

By linking your responses with routinely collected data you could make a real difference. This could help improve the way services are run and help with guidance for those working in healthcare.

We want to make sure that the right support is out there for everyone who needs it. You can help us make a real difference.

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Participant Debrief

Thank you for taking part in this research – all the information you give us is so important to informing future research

While we are not able to provide information on individual responses we will make findings of this research available on the web-portal so you can see how your contribution is really making a difference.

If you have been affected by taking part in this research in anyway or just need someone to talk to please get in contact with the Samaritans on 116 123 – They’re available 24 hours a day 365 days a year – if there is something troubling you then please get in touch.

If you want to talk to someone immediately then please telephone using the number above. However support is also available via email at jo@samaritans.org. Further information can be found on their website www.samaritans.org.

Just having someone to talk to that isn’t family or friends can be a tremendous help. You don’t have to be suicidal to get in touch.

If you have any further questions about this research then get in touch with the research team via the contact us page. We are only able to respond to questions relating to the research itself.

Thank you again for taking part! Your story is so valuable to making a real difference

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